The LGBTQ+ community may encounter unique obstacles in relation to Alzheimer’s and dementia. These challenges can include difficulties in finding inclusive healthcare providers, a lack of adult children to rely on for support, concerns about stigma, and higher rates of poverty and social isolation. Navigating these complex issues can be overwhelming for individuals and their loved ones.
Dementia and the LGBTQ+ community
The Alzheimer’s Association has collaborated with SAGE to release informative documents that shed light on the challenges faced by members of the LGBTQ+ community dealing with dementia. These resources aim to provide guidance on how to navigate these obstacles effectively. The “Issues Brief: LGBTQ+ and Dementia” outlines specific concerns such as stigma, family dynamics, poverty, and social isolation. Additionally, the “LGBTQ+ Older Adults and Dementia” guide offers valuable insights for LGBTQ+ individuals living with Alzheimer’s or other forms of dementia.
In a recent panel discussion titled “ALZPride: Voices of the LGBTQ+ Community,” individuals like Clint Kershaw and his partner shared personal experiences of navigating dementia together. This discussion also highlighted the efforts of organizations like SAGE and the Human Rights Campaign in promoting inclusivity and equitable care for LGBTQ+ older adults. These initiatives strive to bridge gaps and provide support to those in need within the community.
Caregiver resources for LGBTQ+ community members
Spouses, partners, and family members within the LGBTQ+ community who are caregivers for individuals with Alzheimer’s also face their own set of challenges. Finding culturally sensitive care, support networks, and resources can be particularly daunting. The “LGBTQ+ Caregiver Concerns” resource offers essential information on legal matters, healthcare access, and disclosure of sexual orientation for caregivers.
ALZConnected® serves as an online community where caregivers and individuals living with dementia can connect and find support. Tailored forums for LGBTQ+ community members and allies provide a safe space for sharing experiences and seeking advice. Additionally, organizations like SAGE and the Alzheimer’s Association’s local chapters offer webinars, resources, and assistance with care planning to support caregivers in their journey.
Resources for LGBTQ+ community members
The Alzheimer’s Association, alongside national partners like SAGE, offers a range of resources for LGBTQ+ individuals living with Alzheimer’s and other forms of dementia. These resources aim to provide vital information, support, and guidance to those in need. Through initiatives like ALZConnected® and the SAGE National Resource Center on LGBTQ+ Aging, individuals can access a wealth of information on housing, discrimination, and long-term care tailored to LGBTQ+ older adults.
SAGECare provides training on culturally competent care for LGBTQ+ older adults, including specialized modules on dementia care and training for memory care providers. The National LGBTQ+ Elder Hotline and other advocacy organizations like Lambda Legal and the Gay and Lesbian Medical Association offer additional support and resources for LGBTQ+ individuals seeking healthcare services and legal assistance.
Clinical study findings from the Alzheimer’s Association
While there is limited clinical research on the intersection of the LGBTQ+ community and Alzheimer’s and dementia, researchers are beginning to explore these crucial yet overlooked issues. Studies have shown an increased risk of subjective cognitive decline among LGBTQ+ individuals compared to cisgender heterosexual Americans. Moreover, the prevalence rate of dementia among LGBTQ+ adults aged 60 and above is estimated at 7.4%.
The Research Inclusion Supports Equity (RISE) study, conducted by Emory University, the University of Nevada, Las Vegas, and the University of Tennessee, Knoxville, aims to address the underrepresentation of the LGBTQ+ community in Alzheimer’s research. These efforts are crucial in advancing our understanding of how Alzheimer’s impacts diverse populations and ensuring that all individuals receive equitable care and support.
Our commitment to the LGBTQ+ community
The Alzheimer’s Association is dedicated to supporting and standing in solidarity with the LGBTQ+ community. We believe in fostering inclusivity, acceptance, and equality for all individuals, regardless of sexual orientation or gender identity. While health challenges like Alzheimer’s and dementia affect everyone, irrespective of identity, we are committed to creating safe and supportive spaces where all individuals can thrive authentically.
Through strategic partnerships with national and local organizations, the Alzheimer’s Association works towards advancing health equity, promoting access to resources, and advocating for diversity and inclusion in the fight against Alzheimer’s. As we participate in upcoming Pride events and festivals, we look forward to showing our support for the LGBTQ+ community and continuing to work towards a more inclusive future for all.
