Tag: Rare disease research
Decades of NIH Research Uncover Insights on Rare Bone, Skin, and Endocrine Disease
Decades of NIH Research Uncover Insights on Rare Bone, Skin, and Endocrine DiseaseFor many years, doctors have been trying to understand why patients with fibrous dysplasia/McCune-Albright Syndrome experience such unique symptoms. This rare genetic...
Decades of NIH Research Reveals Insights on Rare Bone, Skin, and Endocrine Disorder
Decades of NIH Research Reveals Insights on Rare Bone, Skin, and Endocrine DisorderPatients with fibrous dysplasia/McCune-Albright Syndrome often face challenges such as easily breaking bones, early puberty, and potential vision and hearing loss. For...