Tag: Rare disease support groups
Decades of NIH Research Uncover Insights on Rare Bone, Skin, and Endocrine Disease
Decades of NIH Research Uncover Insights on Rare Bone, Skin, and Endocrine DiseaseFor many years, doctors have been trying to understand why patients with fibrous dysplasia/McCune-Albright Syndrome experience such unique symptoms. This rare genetic...
Rare Disease Research: NIH Findings on Bones, Skin, & Endocrine System
Fibrous dysplasia/McCune-Albright Syndrome is a rare genetic disease that affects bones, skin, and the endocrine system. Patients with this condition may experience fractures, early puberty, vision and hearing loss, and other complications. While there...