Tag: Rare Diseases

news-13102024-012027

Readers’ Opinions on Covid, Trump, Rare Diseases, and Institutional Neutrality: A Comprehensive Overview

First Opinion is STAT’s platform for interesting, illuminating, and provocative articles about the life sciences writ large, written by biotech insiders, health care workers, researchers, and others.“To encourage robust, good-faith discussion about issues raised...
news-12082024-163301

Understanding Angelman Syndrome: What You Need to Know & Colin Farrell’s Son’s Battle

Colin Farrell, the well-known actor, is taking a step forward in raising awareness for a rare genetic condition known as Angelman syndrome. This move comes as he aims to provide more support and resources...
news-09082024-223626

Studying Rare Congenital Heart Defects: $13M Project Commits to Investigate Biological Mechanisms

Single ventricle heart disease is a rare condition that affects about 1 in 15,000 babies born in the U.S. This congenital defect occurs when one of the heart's lower chambers does not fully develop....